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 Post subject: I'm still here...
PostPosted: Thu Aug 31, 2006 11:39 pm 
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I have browsed a few times in the last few months.

I have been kinda out of it and sick for about 4-5 months.
Dont let the name scare you...I have Graves disease.Non contagious,but deadly if not treated.
Not to mention rare for a male to get it. 1/4 of 1% of the population get it,and only 1 out of 8 of them are male.....dont I feel special

It is supposed to be heriditary..but I am the first in the family to have it to everyone I have spoke to. It really really sucked.I started noticing myself sweating all the time...70degrees or 90,didnt matter,and dropped about 34 pounds before I finally started getting treatment for it.I would just start shaking like crazy for no reason,as well as many other symtems,The worst thing I have ever went through.At first all the doctors thought it was just hyperthyroidism,but that was just a symtem of what I really had...I have had more tests done on me in the past 2 months than I have had in my entire life.You can read more about it here if you wish.
http://www.ngdf.org/faq.htm

I am finally starting to feel way better after just 2-3 weeks of taking the meds to fix it.What happens is I have to take the meds for a year,then they take you off of it,if the thyroid goes hyper again,they will either have to nuke it,or take it out. If it doesnt,then they still have to monitor me forever.It was all pretty scary(I have never had any diseases or anything major wrong with me),so it kinda freeked me out a bit. Lets hope for the best I guess.

Back to the fun. OzZ messaged me and told me that you all are into the ET, I just havent had the energy to do anything ~ But,I am feeling alot better now,so I will download it this weekend sometime,and check it out...of course I will be a little noobish.

Thats what I have been up to lately...hope to see you all soon in the server.

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 Post subject:
PostPosted: Fri Sep 01, 2006 12:28 am 
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Ouch - best of luck - had a few good games of ET but seems to be hard getting people together at the same time plus I have to go to bed a bit earlier most nights atm coz of work.

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 Post subject:
PostPosted: Fri Sep 01, 2006 1:08 am 
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Sorry to hear Skraggy... Hope all works out and you get well soon... it will be good to get some ET going ;)

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 Post subject:
PostPosted: Fri Sep 01, 2006 3:20 am 
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Damn...sorry to here, my friend. I'm glad you're getting better, and, I pray for your continued progress. I know you're one strong mofo, so, I expect you to beat that disease.

Talk to ya soon bud
Peace.

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 Post subject:
PostPosted: Fri Sep 01, 2006 4:37 am 
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Jeezzze Skraggy and I thought you were too busy working. It is great to hear you are getting treated for it and best of all you are getting better. Just keep fighting cause you will beat it!! Like V-Thrax said "you are one strong mofo" so keep it up.

Talk to you soon

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 Post subject:
PostPosted: Fri Sep 01, 2006 2:44 pm 
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Good luck dude. I was diagnosed with Ulcerative Colitis earlier in the year which really shocked me. Most people dont get it at this age. I refused to be on their medication for life. So I did all this research and changed my diet. I was sort of getting better and then had a setback. Really fatiguing as your immune system attacks your gut. I finally said nuts to this and started the meds. Well let me tell you they are cheap 25 bucks a month and works great! Now I dont mind being their poster boy for the meds, I got my life back. They say its not food specific but I can clearly tell that the protein diet is the way to go for me, plus now I have the best abs of my life. Eating grilled steak while watching the bronco's last night hoping to pack some muscle on over the next year.

Work was incredible, they basically let me take a month off and said 'take whatever time you need dude'.

Hang in there, do you research, take your meds. Turns out GBF is sort of a cure for UC but nobody sells it that I can find - germinated barley foodstuff.


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 Post subject:
PostPosted: Sat Sep 02, 2006 1:06 pm 
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Thanx guys. I feel so-so most of the time now,but yesterday was a bad day.

The worst month was when they were doing all the tests. They new where the problem was,but did not want to treat it until they found the source.

Thanx for the support,I will make it through this and hopfully be 100% normal again soon.

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 Post subject:
PostPosted: Sat Sep 02, 2006 1:54 pm 
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It's heriditary from the mother's side. You should check that part of the family
to see who else had it. Turns out everyone on my mother's side had it, without
knowing what it was. Now it's affecting my sister, she had it nuked recently.
It usually affects the females and seldom the men. On the other hand, my
grandmother in Texas never had problems, and she's into her late 80's.

Me, I've always been in good health and good shape. (knock on wood).
But makes you wonder sometimes.

Because it's "rare", doctors don't always recognize it until symptoms get
very severe.

The earlier the treatment, the better.

Good Luck.

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 Post subject:
PostPosted: Sat Sep 02, 2006 2:00 pm 
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Location: Buffalo / Niagara Falls area, NY
skraggy, I'm glad the found out what it is, and your on the path to getting better. W're all thinking about you. Take care of your self!

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 Post subject:
PostPosted: Thu Sep 07, 2006 5:19 am 
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No way. Dude, I was diagnosed with the same thing in May. Must be due to Quake 3 :)

I lost about 25 lbs in a short amount of time (6 to 8 weeks) and would sweat like hell just mowing the lawn and felt as if I would pass out after 15 minutes. I too would shake, really bad sometimes ... like an alcoholic who needs a drink bad. I was like wait a minute .. I quit drinking. Why am I shaking? Maybe I need to go back to drinking!!

Anyway, I followed up with my doctor, had some tests done and was confirmed that I had it the day I came home from the hospital with my new son.

I had my thyroid nuked with radiation to take it from hyper to hypo which happened in about 2 months. Eventually went back in for more tests the middle of August and was found to be hypo, so now I am taking meds to bring the levels up. I'll get tested again at the end of the month to see where I'm at and whether or not the meds need to be adjusted. I am glad to say that I do feel better.

Graves does run in my family. My brother has the same thing. I guess it's from the video games :)


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 Post subject:
PostPosted: Fri Sep 08, 2006 9:48 am 
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Sorry to hear that 3. I made my primary doc refer me to a specialist. I was telling him for 2 months that something was wrong,and he ordered a blood test...I was going in to do the blood test and they called and cancelled on me. So,I was felling pretty bad that day,and was a little bent that he cancelled on me,so I went to a Walk-in clinic and had the blood work done. The clinic I went to is part of the biggset hospital in this county,and they found it right away,and suggested that I see a specialist instead of my primary.

The guy I went to ordered a few more tests,thyroid ultrasound,nuclear-iodine scan and more blood work. He seems pretty confident that the medication will work for the long term,he said about 80 out of 100 times it will make for a permanant fix,but must be checked on frequently. Its kind of odd that you were not offered this,and they chose to nuke it. I think that is kind of what the MD at the clinic was warning me to try and steer clear of. Mine was pretty bad,my TSH levels were unreadable,and alot more aspects came out of the other tests.

I am felling better most of the time,but the wieght is slow coming back with the meds.
From 174,to 140 and now at 147 after 3 weeks of meds.Which is pretty much on track.The specialst said about 3 months to get back to normal....We'll see.

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 Post subject:
PostPosted: Fri Sep 08, 2006 4:25 pm 
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The only reason my sister was able to find out what the problem really was,
is that she's a professional Nurse in a major hospital, with access to better
medial resources and knowledgable friends.

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 Post subject:
PostPosted: Fri Sep 08, 2006 5:55 pm 
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I lost weight with UC too. I got shreaded though. People constantly pointing out ripped abs and even my calves are more vascular..and got pointed out. Forget about those XX large shirts. Last shirts I bought were small and medium. So I am getting my workout scene back together and ordered a sweet preacher curl stand so I can gently do skull crushers without pissing of yet another shoulder injury when I return it to the rack rather than all the way down to the floor. Its coming around too.

I am having fun with musclebuilding supplements, I tried everything they have. I like taking glutamine, anavol, creatine, luekic and I start the day off with NO*Explode which used to give me a sort of out of body experience but I am fairly used to it now. But the pump my arms got this morning felt like balloons for about 30 minutes. The NO*Explode leaves you pumped all day which is another thing people noticed at the pool. I dont really care about garden hose vascularity but since I was diagnosed with high blood pressure its actually therapy, I go and get checked now and I am at the BOTTOM of the blood pressure scale. Low low blood pressure. Weight loss probably helped too.

I found yet another remedy for UC today, but unlike GBF ( germinated barley foodstuff ) I actually found a place that sells it. Oddly none of these UC remedies are available at places like 'Whole Foods' or 'Vitamin cottage'.

So chow down and pack on the pounds dude, I want to get back to 190 lbs. I think with my redesigned life with reduced stress Ulcerative Colitis will eventually go away even though they say there is no cure.


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 Post subject:
PostPosted: Fri Sep 08, 2006 7:45 pm 
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[quote1157740621=skraggy]
Sorry to hear that 3. I made my primary doc refer me to a specialist. I was telling him for 2 months that something was wrong,and he ordered a blood test...I was going in to do the blood test and they called and cancelled on me. So,I was felling pretty bad that day,and was a little bent that he cancelled on me,so I went to a Walk-in clinic and had the blood work done. The clinic I went to is part of the biggset hospital in this county,and they found it right away,and suggested that I see a specialist instead of my primary.

The guy I went to ordered a few more tests,thyroid ultrasound,nuclear-iodine scan and more blood work. He seems pretty confident that the medication will work for the long term,he said about 80 out of 100 times it will make for a permanant fix,but must be checked on frequently. Its kind of odd that you were not offered this,and they chose to nuke it. I think that is kind of what the MD at the clinic was warning me to try and steer clear of. Mine was pretty bad,my TSH levels were unreadable,and alot more aspects came out of the other tests.

I am felling better most of the time,but the wieght is slow coming back with the meds.
From 174,to 140 and now at 147 after 3 weeks of meds.Which is pretty much on track.The specialst said about 3 months to get back to normal....We'll see.
[/quote1157740621]


It was my PCP that referred me to a specialist, an internal medicine MD at a local outpatient clinic in a hospital. I had two tests done. One, was the radioactive iodine uptake, and then the nuclear scan to see if the uptake was uniform, which it was. Based on these two, the specialist said I had Grave's.

When I say nuked, I don't mean comletely removed. I was give nabout 8 miCu? of Iodine which was suppose to "shrink" the thyroid down. By how much, I really don't know at this point. But apparently it was enough to take my levels from hyper to hypo.

My brother, on the other hand, had his thyroid completely removed. I asked the specialist what was the typical treatment for this and he said surprisingly, - it depends on who you see and where :)


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 Post subject:
PostPosted: Sat Sep 09, 2006 2:47 pm 
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That was also explained to me,and may still be an option if the meds do not work.

The guy I saw specializes in Endocrinology and Metabolism. Endo is all about your thyroid,if it is off,it can mess you up pretty bad.I have always been healthy,normal weight.

Blade,I can eat all I want,but it does nothing as far as weight gain goes.Food seems to be directly related to energy in my case.If I eat more,I cant sleep and vise versa.That is what I have learned myself over the past few weeks.Before being diagnosed and starting the meds,I was amazed at how much I was eating,and dwindling at the same time.I was eating more than the norm without really realizing it until the GF brought it to my attention.Drinking water like it was going out of style.Probably a couple gallons a day.

Satori,my brothers wife is 2 years shy of an MD,so I had a little guidence there also.She and other friends that I didnt see in a while,and they were like "what is wrong with you,you dont look too good".

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